Stress among Primary Caregivers of Liver Transplant Patients
Anjana A P1*, Arunima V S2, Jaisha M J2
1Assistant Professor, Amrita College of Nursing, AIMS, AMRITA Vishwa Vidyapeetham University, Health Sciences Campus, Kochi- 41.
2II year Post Basic B Sc Nursing Students Amrita College of Nursing, AIMS, AMRITA Vishwa Vidyapeetham University, Health Sciences Campus, Kochi- 41.
*Corresponding Author Email: anj_pillai@rediffmail.com
ABSTRACT:
Liver transplantation is the replacement of a diseased liver with some or all of a healthy liver from another person. Liver transplantation is a viable treatment option for end stage liver disease and acute liver failure. Family members of liver transplant patients continue care giving activities for a lengthy period after transplantation. A descriptive study was conducted to assess the stress among primary caregivers of liver transplant patient at AIMS, Kochi. The objectives of the study were to identify the stress among primary caregivers of patient undergone liver transplantation and find out the association between the level of stress and selected demographic variables. Methodology: the research design used for the study was quantitative descriptive research design and the samples were 50.Sampling technique was convenience sampling. The tool used for the study was Dr. Steven Zarit (modified version) self stress-assessment scale along with a semi structured questionnaire. Result: majority of the subjects 46 (92%) were have mild stress and only 4(8%) were had moderate stress. None of them reported to have severe stress. There is a significant association between stress with age (p=0.028), income (p=0.088) and duration of care (p=0.088). Conclusion: the study findings showed that the direct caregivers of liver transplant patients had mild stress since majority of the care givers were life partners.
KEYWORDS: stress, primary caregivers, liver transplant patients.
INTRODUCTION:
Chronic liver disease refers to disease of the liver which had lasted over a period of 6 months. It consists of a wide range of liver pathology which includes inflammation, liver cirrhosis and hepatocellular carcinoma. The treatment of chronic liver disease may vary depending on the severity includes medical, nutritional and surgical management. Transplant is required when the liver fails and there is no other alternative1.
Although liver transplantation lengthens the life of patient with chronic liver failure and increase their quality of life, liver transplant recipients continue to experience health problem and symptoms after transplantation. After transplantation, there is continuous need to follow strict routine of medications and self-care. Family members of liver transplant patients continue care giving activities for a lengthy period after transplantation. Therefore the transplant recipient family members are also affected by this circumstance, especially as they continue to perform emotional and instrumental care giving tasks like providing emotional support, accompanying the patient in the medical appointments, attending dietary requirements, assuming duties and roles at home. Studies showed that caregivers experienced considerable care giving overload. Women reported performing more care giving activities, higher perceived overload, and higher level of depression than men.2 Miri Cohen, DafnaKartz, Yaacov Baruch conducted a study to assess the effect of stress on psychological distress and perceived health of family caregivers of liver transplant recipients. Setting and participants were twenty- four caregivers of liver transplant recipients treated at a liver transplantation unit serving the Northern part of Israel. The study recognized that caregivers experienced considerable care giving overload. Women reported performing more care giving activities, higher perceived overload, and higher level of depression than men. Increasing passage of time since transplantation, higher perceived overload, higher sense of relational deprivation, and lower sense of personal gain were significantly associated with higher level of depression and worse perceived health. Perceived support and level of depression and worse perceived health. The conclusion of the study was care giving stress endures after transplantation. Professional intervention is needed to improve caregivers quality of life and consequently, that of transplant recipients as well.3 There are no adequate studies been conducted on this area. In view of this the researchers would like to explore the stress experienced by primary care givers of the living related liver transplant patient during the postoperative period. Liver transplantation is the treatment of choice of end stage liver disease. Some researchers suggest that the care givers of liver transplant patients experiencing tremendous stress because of non synchronized family interaction.
OBJECTIVES OF THE STUDY:
- Identify the stress among primary caregivers of patient undergone liver transplantation.
- Find out the association between the level of stress and selected demographic variables
MATERIALS AND METHODS:
Quantitative approach with descriptive design was used. The study was conducted among 50 primary caregivers of liver transplant patients attending in liver transplant unit (T6F1) of AIMS, Kochi. The data were collected using semi structured questionnaire and it was analyzed using appropriate statistical methods. The following tools were used for the study: Tool 1was a structured questionnaire to assess demographic data of primary caregivers. Tool 2 was caregivers self stress assessment tool. Data collection was done by using semi structured questionnaire and the stress was assessed by using modified version of the caregivers self stress assessment tool.
Inclusion Criteria:
1) Primary caregivers of liver transplant patient who were caring for less than 5 years.
2) Primary caregivers who is willing to participate in the study.
RESULTS:
Table 1: Sample characteristics based on demographic variables. n=50
|
Sl No |
Demographic Variables |
Frequency |
Percentage(%) |
|
1 |
Age |
|
|
|
|
20-30 years |
2 |
4 |
|
|
31-40 years |
10 |
20 |
|
|
41-50 years |
22 |
44 |
|
|
>50 years |
16 |
32 |
|
2 |
Religion |
|
|
|
|
Hindu |
33 |
66 |
|
|
Christian |
11 |
22 |
|
|
Muslim |
6 |
12 |
|
3 |
Occupation |
|
|
|
|
Employed |
19 |
38 |
|
|
Unemployed |
31 |
62 |
|
4 |
Marital status |
|
|
|
|
Single |
1 |
2 |
|
|
Married |
49 |
68 |
|
5 |
Income |
|
|
|
|
<5000 |
7 |
14 |
|
|
5001-10000 |
7 |
14 |
|
|
10001-15000 |
14 |
28 |
|
|
>15000 |
22 |
44 |
|
6 |
Health status |
|
|
|
|
Good |
47 |
94 |
|
|
Average |
3 |
6 |
The data presented in table1 shows the distribution of sample based on demographic variables. Highest percentage 22 (44%) were in the age group of 41-50 years. Majority of subjects 33 (66%) were Hindu. Most of the subjects 31 (62%) were unemployed. And majority of the subjects were married 49 (98%). Most of the subjects were spouses 40(80%). Regarding health most of the subjects were healthy 47 (94%).
Figure 1 : Distribution of subjects based on duration of care of patients
Figure 2: Distribution of subjects based on relation with patient
· Study findings shows there was a significant association between age (p=0.028), duration of care (p=0.018 ) and income (p= 0.032 ) with stress
Section 2: Stress among primary caregivers of liver transplant patients
Figure 3: Distribution of subjects based on severity of stress
CONCLUSION:
The study findings showed that the direct caregivers of liver transplant patients had mild stress since majority of the care givers were life partners. In contrast to the present study previous studies revealed the caregivers are having high psychological distress. The small number of participants and the response rate were major limitation of the study, reducing the possibility of generalization
REFERENCES:
1. https://en.wikipedia.org/wiki/Liver_transplantation
2. Adhal M, Hansen B A, Kirkegaard P, Groenvold M. Fatigue and physical function after orthotopic liver transplantation.2002;8:251-259
3. Miri Cohen, Dafna Katz, Yaacov Baruch, Stress among the family caregivers of liver transplant recipients. Progress in Transplantation March 2007; ProQuest Nursing and Allied Health Source 17(1): 48-53.
Received on 20.06.2016 Modified on 17.07.2016
Accepted on 18.09.2016 © A &V Publications all right reserved
Asian J. Nur. Edu. and Research.2017; 7(1): 105-107.
DOI: 10.5958/2349-2996.2017.00021.0